Milo and Charlie McConnell are being featured in many adorable pictures that are being posted on their mother’s Facebook page. The two were born with Down syndrome and are fraternal twins, which is extremely uncommon.
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And that’s a wrap for the birthday celebrations! Today we celebrated with our family and close friends with a yummy grilled cheese bar (Google this right now and plan a party – YUM!) and cupcakes baked in ice cream cones. Charlie and Milo are crazy about ice cream cones – ice cream is fine and all, but it’s the cones they love! So it was the perfect treat and both boys ate every. last. bite. . Milo decided today that he is officially a threenager. All day long it was “No! No! No! No!” At church, he didn’t want to go with us down the hall. “No!” At home he didn’t want to take a nap. “No!” At dinner he didn’t want his grilled cheese. “No!” And I kid you not, when I turned on the camera to record this behavior, he instantly became aaaallllll sweetness! Swipe left for the video. I’m concerned for this kid’s future now… ?? . Friends, thank you so much for all your kind words and wishes for us this birthday season and every day! I wish I had time to answer every comment. Please know that I read them all and I can feel the love you all share! Thank you for following our crazy story! Blessings!! ❤️❤️ . #downsyndrome #upsyndrome #nothingdownaboutit #lifeisbetterwithyou #twinswithdownsyndrome #t21 #theluckyfew
Down syndrome is a condition in which a person has an extra chromosome. Chromosomes are small “packages” of genes in the body. They determine how a baby’s body forms during pregnancy and how the baby’s body functions as it grows in the womb and after birth.
Typically, a baby is born with 46 chromosomes. Babies with Down syndrome have an extra copy of one of these chromosomes, chromosome 21. This extra copy changes how the baby’s body and brain develop, which can cause both mental and physical challenges for the baby, according to the CDC.
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Game Day! And the boys are still pretty much at the top of their game. There were a few tears today, extra long snuggles after nap and getting them to eat required some persistence, but overall it was another surprisingly great day! . Just to catch up any new followers, Charlie and Milo had their tonsils and adenoids removed on Tuesday and we have been bracing ourselves for a very difficult recovery. . Today was Day 5 and their breath, well, let’s just say we couldn’t always tell if we should give them a stick of Trident or check their diapers, ya know what I’m sayin’? But for whatever reason – we don’t really care why, just are thanking God every day for it – they continue to act as if they feel very well! . The boys spent the evening watching Boise State’s first game, playing our own version of football and eating ice cream, French fries and soft, heavily buttered Eggo waffles. Now we have a relaxing Sunday and Monday holiday to rest up! . I believe it truly is a mercy from God that the boys have been feeling so well. I took a look in their throats today and there was some definite major work done in there! I’d probably be crying all day if it were me! . Thank you all once again for following along, checking in on us and encouraging us! (((Hugs))) . #downsyndrome #upsyndrome #nothingdownaboutit #lifeisbetterwithyou #twinswithdownsyndrome #t21 #theluckyfew
Milo and Charlie have been blessed with beautiful parents that are embracing their differences. Julie and Dan are the twins loving parents and intend to brag about their children like all new parents do.
“I feel like these guys, they’re not even quite two (years old), and they’re already self-advocates, just raising awareness,” Julie McConnell said. “When people meet them and see what it’s like to be a person with Down Syndrome, I think it makes a big difference in people’s minds and hearts and understanding.”
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Day 11. Things are definitely looking up. We only woke the boys once in the night for medicine and they slept wonderfully the rest of the time! ?? . There was still some sadness from Charlie with his lunchtime medicine so I think we may need to step it back up a little during the day again. I may have cut out some doses too soon. ☹️ Poor little dude. . And then this morning, randomly, Milo threw up! He was cranky when we dropped Andy off for school and then I had the bright idea to take them to a little open gym to play until it was time to pick him up. Milo was grumping the whole way and I just figured it was his usual displeasure with the car. . He didn’t quite make it in the door. Barfed right there on the welcome mat. I looked in at the lady at the desk and said, “Maybe we will come back a different day!” ?♀️ . She didn’t argue. . So a little more lying low with Signing Time this morning. And then Charlie goes and does this! Crawls up on the couch (as you can see, wisely covered by a blanket, just in case) and puts his arms around his sad brother. Awwww!!! ❤️❤️❤️ Heart melted!! . At least I’m assuming this was a hug and not a sneaky choking attempt…. ? . #downsyndrome #upsyndrome #nothingdownaboutit #lifeisbetterwithyou #twinswithdownsyndrome #t21 #theluckyfew
The photos they share show people all different sides of having children with Down Syndrome, the good, the bad, the happy, and the sad.
“My hope is to attract families that are receiving a diagnosis of Down syndrome for their child because that can be really scary. I hope that people will find us, and see that this is what life can be like,” Julie said. “It can be fun, it’s full of love, it’s not scary. We have no regrets, and there is so much joy in our lives, and I hope that people will see that.”
While some people may not agree with their actions or that the twins are beautiful in their own way, it is undeniable that they are creating a community for parents of children with Down syndrome—a safe space where they can share their experience, too, and learn more about others’ experience.
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Throwback to three years ago. We had just gotten the results of the genetic testing to determine if Charlie and Milo were fraternal or identical twins. . In the United States 1 in every 700 babies is born with Down syndrome or about 600 babies per year. One U.K. source states that the chances are less than one in a million that fraternal twins with Down syndrome will occur. . Until I became pregnant with twins I had no idea how to determine what type of twins one might be carrying. Did you know that identical twins can still be in separate sacs in the womb? With my “advanced maternal age” ? my doctor originally assumed the boys were fraternal. That is most common. However once we received the prenatal diagnosis of Down syndrome for both boys, the geneticist assumed they must be identical. . Charlie was born a full pound bigger than Milo and has remained taller and bigger even since. So from the beginning it was easy to tell them apart. As babies though, we wondered if Milo were to just plump up a bit if maybe the boys would look more identical. We just couldn’t tell for sure by looking what type of twins they were! . So we had them tested. Just a simple cheek swab and mail in the results (and a nice fat check!) and within a couple weeks the results showed that the boys are indeed fraternal twins! . And what we also know about Charlie and Milo is that these boys are remarkable in every way, nothing about them is a mistake and they are precisely who God created them to be! We could not be more thankful for them! . #downsyndrome #upsyndrome #nothingdownaboutit #lifeisbetterwithyou #twinswithdownsyndrome #t21 #theluckyfew #downsyndromeawarenessmonth
“It takes them a little longer to meet milestones, but when they meet goals we celebrate like no other parents alive,” said Julie. “We throw a party and we’re so excited for them when they accomplish those things.”
Julie said on her Instagram page, “So much of what I imagined about having twins seemed to change when I received their prenatal diagnosis of Down syndrome. I believed all my dreams about the future had been dashed, changed, limited.”
Counting blessings is easy for Julie and Dan. They have six loving children, and two of them have Down Syndrome. Every day is a blessing.